Browsing by Author "51fbb5ca-9810-43bb-b11d-ef567ad9f366"
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Adams, D.; O'Reilly, E.; Heussler, H. (Wiley, 2018-08)Background: The rapid growth in genomic medicine has led to advances in potential treatments for a number of rare syndromes. However, little is known about what parents of children with such syndromes think and feel about ...