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Authordc.contributor.authorKramer Strenger, Susanne Marie 
Authordc.contributor.authorLucas, James 
Authordc.contributor.authorGamboa Arellano, Francisca 
Authordc.contributor.authorPenarrocha, Diago, Miguel 
Authordc.contributor.authorPenarrocha Oltra, David 
Authordc.contributor.authorGuzmán Letelier, Marcelo 
Authordc.contributor.authorPaul, Sanchit 
Authordc.contributor.authorMolina, Gustavo 
Authordc.contributor.authorSepúlveda Vega, Lorena 
Authordc.contributor.authorAraya Cabello, Ignacio 
Authordc.contributor.authorSoto Galaz, Rubén 
Authordc.contributor.authorArriagada Vargas, Carolina 
Authordc.contributor.authorLucky, Anne W. 
Authordc.contributor.authorMellerio, Jemima E. 
Authordc.contributor.authorCornwall, Roger 
Authordc.contributor.authorAlsayer, Fatimah 
Authordc.contributor.authorSchilke, Reinhard 
Authordc.contributor.authorAntal, Mark Adam 
Authordc.contributor.authorCastrillón, Fernanda 
Authordc.contributor.authorParedes, Camila 
Authordc.contributor.authorSerrano, María Concepción 
Authordc.contributor.authorClark, Victoria 
Admission datedc.date.accessioned2021-05-13T20:33:56Z
Available datedc.date.available2021-05-13T20:33:56Z
Publication datedc.date.issued2020
Cita de ítemdc.identifier.citationSpec Care Dentist. 2020;40:3–81es_ES
Identifierdc.identifier.other10.1111/scd.12511
Identifierdc.identifier.urihttps://repositorio.uchile.cl/handle/2250/179610
Abstractdc.description.abstractBackground: Inherited epidermolysis bullosa (EB) is a genetic disorder characterized by skin fragility and unique oral features. Aims: To provide (a) a complete review of the oral manifestations in those living with each type of inherited EB, (b) the current best practices for managing oral health care of people living with EB, (c) the current best practices on dental implant-based oral rehabilitation for patients with recessive dystrophic EB (RDEB), and (d) the current best practice for managing local anesthesia, principles of sedation, and general anesthesia for children and adults with EB undergoing dental treatment. Methods: Systematic literature search, panel discussion including clinical experts and patient representatives from different centers around the world, external review, and guideline piloting. Results: This article has been divided into five chapters: (i) general information on EB for the oral health care professional, (ii) systematic literature review on the oral manifestations of EB, (iii) oral health care and dental treatment for children and adults living with EB-clinical practice guidelines, (iv) dental implants in patients with RDEB-clinical practice guidelines, and (v) sedation and anesthesia for adults and children with EB undergoing dental treatment-clinical practice guidelines. Each chapter provides recommendations on the management of the different clinical procedures within dental practice, highlighting the importance of patient-clinician partnership, impact on quality of life, and the importance of follow-up appointments. Guidance on the use on nonadhesive wound care products and emollients to reduce friction during patient care is provided. Conclusions: Oral soft and hard tissue manifestations of inherited EB have unique patterns of involvement associated with each subtype of the condition. Understanding each subtype individually will help the professionals plan longterm treatment approaches.es_ES
Patrocinadordc.description.sponsorshipDEBRA UKes_ES
Lenguagedc.language.isoenes_ES
Publisherdc.publisherWileyes_ES
Type of licensedc.rightsAttribution-NonCommercial-NoDerivs 3.0 Chile*
Link to Licensedc.rights.urihttp://creativecommons.org/licenses/by-nc-nd/3.0/cl/*
Sourcedc.sourceSpecial Care in Dentistryes_ES
Keywordsdc.subjectClinical practice guidelinees_ES
Keywordsdc.subjectDental implantses_ES
Keywordsdc.subjectDental treatmentes_ES
Keywordsdc.subjectDystrophic epidermolysis bullosaes_ES
Keywordsdc.subjectEpidermolysis bullosaes_ES
Keywordsdc.subjectEpidermolysis bullosa simplexes_ES
Keywordsdc.subjectGeneral anesthesiaes_ES
Keywordsdc.subjectJunctional epidermolysis bullosaes_ES
Keywordsdc.subjectKindler epidermolysis bullosaes_ES
Keywordsdc.subjectOral carees_ES
Keywordsdc.subjectOral rehabilitationes_ES
Keywordsdc.subjectRecessive dystrophic epidermolysis bullosaes_ES
Keywordsdc.subjectSedationes_ES
Títulodc.titleClinical practice guidelines: Oral health care for children and adults living with epidermolysis bullosaes_ES
Document typedc.typeArtículo de revistaes_ES
dcterms.accessRightsdcterms.accessRightsAcceso Abierto
Catalogueruchile.catalogadorcfres_ES
Indexationuchile.indexArtículo de publicación ISIes_ES


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Attribution-NonCommercial-NoDerivs 3.0 Chile
Except where otherwise noted, this item's license is described as Attribution-NonCommercial-NoDerivs 3.0 Chile