Measuring change in perceived well being of family caregivers: validation of the spanish version of the perceived change index (PCI-S) in Chilean dementia caregivers
Author
dc.contributor.author
Aravena, Jose M.
Author
dc.contributor.author
Albala Brevis, Cecilia
Author
dc.contributor.author
Gitlin, Laura N.
Admission date
dc.date.accessioned
2018-07-25T19:33:53Z
Available date
dc.date.available
2018-07-25T19:33:53Z
Publication date
dc.date.issued
2018
Cita de ítem
dc.identifier.citation
Int J Geriatr Psychiatry 2018; 33: e120–e130
es_ES
Identifier
dc.identifier.other
10.1002/gps.4734
Identifier
dc.identifier.uri
https://repositorio.uchile.cl/handle/2250/150271
Abstract
dc.description.abstract
ObjectiveFew instruments evaluate family caregiver perceptions of challenges caring for persons with dementia and improvement or worsening in these areas. To address this measurement gap, we examine psychometric properties of a Spanish version of the 13-item Perceived Change Index (PCI-S), originally validated with English-speaking caregivers.
MethodsCross-sectional study with 94 caregivers of persons with mild to moderate dementia in Chile. Interviews included caregiver demographics, burden, health perception, distress with behaviours, dementia severity, behavioural symptoms and functionality.
ResultsCaregiver mean age was 55.9 (SD14.14) years and mean years caregiving was 3 (SD +/- 2.60). The scale had strong internal consistency (Cronbach =0.94), and inter-observer consistency (CCI=0.99; 95% CI=0.95-0.99). Two factors were identified: Management skills (=0.89), and somatic well-being and affects (=0.92), explaining 63% of scale variance. Significant associations supporting convergent validity were observed for PCI-S and subscales with caregiver burden (p<0.01), health perceptions (p<0.01), depressive symptoms (p<0.01) and distress with behaviours (p<0.01); and in persons with dementia, functionality (p<0.05), dementia severity (p<0.05) and behavioural symptoms (p<0.01) in expected directions. In logistic regression models, perceived worsening (PCI-S and subscale scores) was associated with more behavioural symptoms (OR=1.07; 95% CI=1.03-1.15) and caregiver burden (OR=1.48; 95% CI=1.18-1.86); whereas perceived improvement was associated with higher physical functioning (OR=0.95; 95% CI=0.91-0.99) in persons with dementia. PCI-S scores were not associated with socio-demographic characteristics reflecting divergent validity.
ConclusionsSpanish version of the 13-item Perceived Change Index and its two-factor solution is a valid and reliable measure with clinical utility to detect improvement or worsening in caregivers concerning daily care challenges.
es_ES
Patrocinador
dc.description.sponsorship
Chilean National Fund for Research in Science and Technology
FONDECYT 1130947
National Institute on Aging
R01AG041781
R01AG049692
Measuring change in perceived well being of family caregivers: validation of the spanish version of the perceived change index (PCI-S) in Chilean dementia caregivers